No Stereotypes Here

Posts Tagged ‘Autism Rights Movement

Not long ago, I heard about a survey being done by the Redpath Centre on the needs of Autistic Adults. Looking at the website, I see that the purpose of the survey is to gather materials in order to advocate for better services.  Curious and always willing to help out, I emailed them, and received this reply:

Thanks for your interest in the Adults Count! Survey which is being led by The Redpath Centre. We wanted to bring you up-to-date on the project.

The survey will launch later this month and will be available for completion until spring 2011. All surveys can be completed on-line unless you request a paper version. The information gathered will be used to understand the needs of adults living with Autism Spectrum Disorders in Ontario. It will take about 30 minutes to complete. There are three versions of the survey depending on who is completing it. It can be completed by:

(1) An individual 16 years old or older who has been diagnosed with an Autism Spectrum Disorder (i.e., “Autism”, “Autism Spectrum Disorder”, “High-Functioning Autism”, “High-functioning Pervasive Developmental Disorder”, “Pervasive Developmental Disorder, Not Otherwise Specified (NOS)” or “Asperger Disorder/Syndrome”) by a professional; OR

(2) A family member (e.g., sibling, parent) who is knowledgeable about the needs of a specific individual, 16 years old or older, diagnosed with an Autism Spectrum Disorder; OR

(3) A professional (e.g., group home worker, Adult Protective Service Worker, therapist) who is knowledgeable about the needs of a specific individual, 16 years old or older, diagnosed with an Autism Spectrum Disorder.
If you have not notified us already, please let us know what version you would like to complete.
We hope to have a large number of people complete the survey to ensure the results are as comprehensive as possible, so please forward this email to individuals who may be interested. They can express their interest by emailing us at: adult.survey@redpathcentre.ca.
Thanks again for your interest in this important project. If you have any questions do not hesitate to contact us.

Given the admirable goal of the survey, and the mission of the centre, I decided to pass this along for anyone who might be interested.

gee, that sounds like a movie or something…. anyways, I had this late night discussion on twitter the other night, and found that I was having trouble expressing myself in 140 characters.  It probably did not help that I think the person whom I was conversing with may have been mistaking the topic of some of the other some-what related conversations, with the topic we were discussing.  So I made this post on tumblr, to try and clear things up, and decided to share it here.

Explaining it a bit for all the folks on twitter

Having a bit of an interesting conversation on twitter that’s getting hard to do with only 140 characters.  So I thought I’d do a break down of my reaction to Kate Winslet’s Golden Hat Foundation.

1) I am a touch jealous, because here is someone seemingly effortlessly set up a foundation to do just the good that many of us in the autism community have been struggling to do.  Just a touch.  Enough that I need to admit it, but not enough to blind me from the fact that yes, this woman has the connections and resources to make it happen.

2) A bit pissed off at the traces of martyr-parent of autistic child that I’m seeing in the mass media.  This is compounded into RAGE over the fact that I have been discussing the rather disgusting fundraising depictions of autism that some orgs use, and ways to protest and ways to describe the depths of my feelings about it.

3) a bit worried.  Oh yes, she has the potential to do fabulous things, and maybe the Autism Women’s Network can get in contact with her and we can do partnership things and get supports for under-diagnosed and under-supported autistic women and this will be AWESOMENESS.  and I really really really really really really really really really really hope that this is the case. But I gotta keep myself grounded; there is the possibility, however far-fetched, that she might turn down the woo-trail and make more work for us self-advocates.  So far, it looks like this isn’t the case, but the foundation has just begun, and sometimes weird stuff happens.

So no, I haven’t actually JUDGED Winslet yet (although I absolutely hated Titanic, but that’s not exactly her fault), although I have started picking through all the language on the website and I have faulted the media for its child-focused approach to autism.  There are some pieces that are picking up the slack and including autistic adults, but we still have a long road to go.

Also, the fact that the only faults I can find on the site is that she lists Autism Speaks as a resource.  But she also gains points by listing some very good research on autistic intelligence (done in Canada too, yay Canada!).

So as things go, nothing’s set yet, and I’m just waiting to see, and sprouting out my opinions online.

There you go, my opinion on the matter, so far. And of course, since it is an opinion, I have the right to change my mind at a later date. I expect that I’ll be letting everyone know if I do.

Posted on: September 28, 2010

I just came across this and wanted to share, from Laura Brydges on Facebook:

Hello! Hidden Disability (on Facebook) has just launched a survey that asks some very important questions about disability. It is a secure and confidential English-language survey that will give adults everywhere their chance to share their opinions on some new disability issues. Just click on the secure web link below and you will be taken to survey directly.

The survey is the result of advocacy efforts of two women who both have disabilities. They have funded this research through garage sales, and are relying on word-of-mouth for this survey to reach as many people world-wide as possible. So please forward this message onto all of your contacts, friends and family, and ask them to take part too.

The survey should only take 15 to 20 minutes to do. The link is http://www.surveymethods.com/EndUser.aspx?DBFF9389DB918E89DB

Please take part, and remember to forward this message onto everyone you know. Thanks!

Julie of Julie Jabbers recently received the Versatile Blogger Award, and passed it onto seven bloggers, including Big Daddy Autism. He, in turn, passed it on to Kathleen at AutismHerd. And then she has passed it onto me!!! Specifically, this blog.

And as part of the rules, I have to share seven unknown things about myself and pass it along to seven more bloggers.

  1. I am technically published in Scotland. In 2007, I studied at the Scottish Universities’ International Summer School in Creative Writing, and wrote a non-fiction piece about my childhood that was published in their 2006-2007 publication.
  2. I hate red-coloured candy. Not only does it not taste good, but I get migraine headaches from them too.
  3. I dislike initiating phone calls, especially to strangers. I prefer to call places after hours and leave a message on the message machine.
  4. I like dressing up and can even imagine writing zombie and scary movies, but I can’t watch them.
  5. I am either the best or worse procrastinator you’ll ever meet. I can procrastinate at procrastinating at procrastinating to procrastinate.
  6. When watching a TV/anime series, I will not finish it at night. Because I get depressed that the series is over in my head. I will actually put off finishing a series because I don’t want it to end in my head.
  7. I have, on occasion, out-geeked my geeky boyfriend. With references to stuff I haven’t even watched or played.
  8. EXTRA!!!! I like to hug grumpy cats when they’re trying to sleep. (yes, it is my fault if I get bit or scratched)

Really? Seven bloggers? Do I really have to? Sigh, okay, let’s see….

  1. Mama Be Good
  2. Genderbitch
  3. Cracked Mirror in Shalott
  4. Abnormaldiversity
  5. Neuroskeptic
  6. Autist’s Corner
  7. Comet’s Corner

Ta-Da!!! I found seven bloggers.

Now the question is whether or not they notice……

😀

I made this comment on Daybreak Autism blog:

I just wanted to give you my input, as an autistic person who has heard a lot about ABA, and some of the long-term effects of ABA.

Your goals should not be to render a child to be indistinguishable from his/her peers. This is impossible, as there is no set mold for human beings.

You also should not be aiming to make a child automatically obedient, as this may damage the long-term ability to make decisions for his/her self and be able to avoid potentially abusive situations.

You goal should be to help people in the community, the family and the child to understand the strengths and weaknesses of the child, and help the child to develop skills to overcome disabilities and develop life skills in order to become as independent as possible. The goal is like being a parent, to raise a child to, ultimately, not need you anymore.

The difference is that there are various degrees of independence, and some have different potentials, but what really matters is being able to live freely, interacting as one wishes, and living happily.

this is my opinion as an autistic.

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Hi!

Upon the advice of my fellow bloggers, I decided to create a mirror site for my No Stereotypes Here blog.  Because you never know when things decide to go belly up on you and it’s always good to be prepared.

This is my first blog on WordPress, so HI!!!!!!!!!

In the next couple of days, I will be ‘porting in for all to see make that, few minutes…. 😀

Okay then, for the record, all the posts previously and from now onwards are imported from my No Stereotypes Here a Neurodiversity Activist blog, unless otherwise stated.

Both versions of No Stereotypes Here are personal activism/advocacy/awareness blogs, and do not relate or represent any organization. In other words, I speak for Me, and me only. If you happen to agree, awesome! If not, well, see my Code of Conduct.

See you around!Autism Corina Becker Corina Lynn Becker Neurodiversity Disability Autism Women’s Network AWN awn autism women’s network human rights disability rightsSee

Last month, I wrote about how the Autism Women’s Network is participating in the Pepsi Refresh Project in order to get the $50K grant. This grant goes towards hosting workshops across the United States for autistic females to be able to access accommodations and supports in their communities. The money also goes towards legal fees to secure the AWN’s non-profit status, as well as site maintenance.

Sadly, the Autism Women’s Network was unable to get into the top 10 positions needed to be awarded the grant. However, we were able to make the top 100 and carry over into this month.

As a result, we have decided to help promote our cause this month by profiling autistic females. Each day, strong, courageous, creative and unique females with Autism tell their stories and share with us their personal experiences and perspectives of themselves and about Autism.

Please join us as we discover what it’s like to be female and autistic.



(Discloser: Corina Becker is Director of Networking and on the Board of Directors for the Autism Women’s Network)
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  • Corina Becker: Hi Anonymous person who apparently doesn't feel like giving me a name to address, and thus hides behind anonymity!!! I never said the federal gov
  • Anonymous: I think that it is about time something is being done federally to help those with ASD to get much needed therapies for their disability and YES I do
  • Corina Becker: Hi Janine! Melody reads here? Awesome. I honestly had no idea she was aware of this blog.And thank you so much, I'm glad both of you like the bl

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